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1

Optimizing the Diagnosis and Management of Dravet Syndrome: Recommendations From a North American Consensus Panel

Wirrell, Elaine C., Laux, Linda, Donner, Elizabeth, Jette, Nathalie, Knupp, Kelly, Meskis, Mary Anne, Miller, Ian, Sullivan, Joseph, Welborn, Michelle, Berg, Anne T.

Journal:

Pediatric Neurology

Year:

2017

Language:

english

File:

PDF, 1.12 MB

english, 2017

2

Current Treatment Strategies and Future Treatment Options for Dravet Syndrome

Ziobro, Julie, Eschbach, Krista, Sullivan, Joseph E., Knupp, Kelly G.

Journal:

Current Treatment Options in Neurology

Year:

2018

Language:

english

File:

PDF, 1.74 MB

english, 2018

3

Infantile Spasms—Have We Made Progress?

Kelley, Sarah Aminoff, Knupp, Kelly G.

Journal:

Current Neurology and Neuroscience Reports

Year:

2018

Language:

english

File:

PDF, 4.02 MB

english, 2018

4

Fenfluramine hydrochloride for the treatment of seizures in Dravet syndrome: a randomised, double-blind, placebo-controlled trial

Lagae, Lieven, Sullivan, Joseph, Knupp, Kelly, Laux, Linda, Polster, Tilman, Nikanorova, Marina, Devinsky, Orrin, Cross, J Helen, Guerrini, Renzo, Talwar, Dinesh, Miller, Ian, Farfel, Gail, Galer, Bra

Journal:

Lancet (London, England)

Year:

2019

File:

PDF, 260 KB

2019

5

Parental reporting of response to oral cannabis extracts for treatment of refractory epilepsy

Press, Craig A., Knupp, Kelly G., Chapman, Kevin E.

Journal:

Epilepsy & Behavior

Year:

2015

Language:

english

File:

PDF, 230 KB

english, 2015

6

Infantile Spasms and Injuries of Prematurity: Short-Term Treatment-Based Response and Long-Term Outcomes

Wallace, Adam, Allen, Victoria, Park, Kristen, Knupp, Kelly

Journal:

Journal of Child Neurology

Year:

2017

Language:

english

File:

PDF, 167 KB

english, 2017

7

Comparative Effectiveness of Levetiracetam vs Phenobarbital for Infantile Epilepsy

Grinspan, Zachary M., Shellhaas, Renée A., Coryell, Jason, Sullivan, Joseph E., Wirrell, Elaine C., Mytinger, John R., Gaillard, William D., Kossoff, Eric H., Valencia, Ignacio, Knupp, Kelly G., Wusth

Journal:

JAMA Pediatrics

Year:

2018

Language:

english

File:

PDF, 309 KB

english, 2018

8

The direct and indirect costs of Dravet Syndrome

Whittington, Melanie D., Knupp, Kelly G., Vanderveen, Gina, Kim, Chong, Gammaitoni, Arnold, Campbell, Jonathan D.

Journal:

Epilepsy & Behavior

Year:

2018

Language:

english

File:

PDF, 433 KB

english, 2018

9

Prospective evaluation of oral cannabis extracts in children with epilepsy

Knupp, Kelly G., Rice, John D., Helmkamp, Laura J., Galinkin, Jeffrey, Sempio, Cristina, Jost, Klawitter, Chapman, Kevin E.

Journal:

Year:

2019

Language:

english

File:

PDF, 241 KB

english, 2019

10

Intravenous Levetiracetam in the Management of Acute Seizures in Children

Pamela D. Reiter, Ashley D. Huff, Kelly G. Knupp, Robert J. Valuck

Journal:

Pediatric Neurology

Year:

2010

Language:

english

File:

PDF, 104 KB

english, 2010

11

Developmental-Behavioral Pediatrics || NERVOUS SYSTEM DISORDERS

Year:

2009

Language:

english

File:

PDF, 608 KB

english, 2009

12

Surgery for infants with catastrophic epilepsy: an analysis of complications and efficacy

Kumar, Ramesh M., Koh, Susan, Knupp, Kelly, Handler, Michael H., O’Neill, Brent R.

Journal:

Child's Nervous System

Year:

2015

Language:

english

File:

PDF, 2.01 MB

english, 2015

13

174 Epilepsy Surgery in Infants Under 1 Year of Age

Kumar, Ramesh Mohan, OʼNeill, Brent R., Koh, Susan, Laoprasert, Pramote, Knupp, Kelly, Park, Kristin, Chapman, Kevin, Handler, Michael H.

Journal:

Year:

2014

Language:

english

File:

PDF, 49 KB

english, 2014

14

Response to treatment in a prospective national infantile spasms cohort

Knupp, Kelly G., Coryell, Jason, Nickels, Katherine C., Ryan, Nicole, Leister, Erin, Loddenkemper, Tobias, Grinspan, Zachary, Hartman, Adam L., Kossoff, Eric H., Gaillard, William D., Mytinger, John R

Journal:

Annals of Neurology

Year:

2016

Language:

english

File:

PDF, 254 KB

english, 2016

15

Response to second treatment after initial failed treatment in a multicenter prospective infantile spasms cohort

Knupp, Kelly G., Leister, Erin, Coryell, Jason, Nickels, Katherine C., Ryan, Nicole, Juarez-Colunga, Elizabeth, Gaillard, William D., Mytinger, John R., Berg, Anne T., Millichap, John, Nordli, Douglas

Journal:

Year:

2016

Language:

english

File:

PDF, 200 KB

english, 2016

16

Duration of use of oral cannabis extract in a cohort of pediatric epilepsy patients

Treat, Lauren, Chapman, Kevin E., Colborn, Kathryn L., Knupp, Kelly G.

Journal:

Year:

2016

Language:

english

File:

PDF, 200 KB

english, 2016

17

Clemizole and modulators of serotonin signalling suppress seizures in Dravet syndrome

Griffin, Aliesha, Hamling, Kyla R., Knupp, Kelly, Hong, SoonGweon, Lee, Luke P., Baraban, Scott C.

Journal:

Year:

2017

Language:

english

File:

PDF, 2.01 MB

english, 2017

18

HeterozygousHNRNPUvariants cause early onset epilepsy and severe intellectual disability

Bramswig, Nuria C., Lüdecke, Hermann-Josef, Hamdan, Fadi F., Altmüller, Janine, Beleggia, Filippo, Elcioglu, Nursel H., Freyer, Catharine, Gerkes, Erica H., Demirkol, Yasemin Kendir, Knupp, Kelly G.,

Journal:

Year:

2017

Language:

english

File:

PDF, 798 KB

english, 2017

19

The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research

Jensen, Mark P., Brunklaus, Andreas, Dorris, Liam, Zuberi, Sameer M., Knupp, Kelly G., Galer, Bradley S., Gammaitoni, Arnold R.

Journal:

Epilepsy & Behavior

Year:

2017

Language:

english

File:

PDF, 366 KB

english, 2017

20

Hormonal therapy with vigabatrin is superior to hormonal therapy alone in infantile spasms

Knupp, Kelly G.

Journal:

The Journal of Pediatrics

Year:

2017

Language:

english

File:

PDF, 91 KB

english, 2017

21

An Atmospheric Pressure Ionization MS/MS Assay using Online Extraction for the Analysis of 11 Cannabinoids and Metabolites in Human Plasma and Urine

Klawitter, Jelena, Sempio, Cristina, Mörlein, Sophie, De Bloois, Erik, Klepacki, Jacek, Henthorn, Thomas, Leehey, Maureen A., Hoffenberg, Edward J., Knupp, Kelly, Wang, George S., Hopfer, Christian, K

Journal:

Therapeutic Drug Monitoring

Year:

2017

Language:

english

File:

PDF, 446 KB

english, 2017

22

Parental Perception of Co-Morbidities in Children with Dravet Syndrome

Knupp, Kelly G, Scarbro, Sharon, Wilkening, Greta, Juarez-Colunga, Elizabeth, Kempe, Allison, Dempsey, Amanda

Journal:

Pediatric Neurology

Year:

2017

Language:

english

File:

PDF, 637 KB

english, 2017

23

Growth and endocrine function in children with Dravet syndrome

Eschbach, Krista, Scarbro, Sharon, Juarez-Colunga, Elizabeth, Allen, Victoria, Hsu, Stephanie, Knupp, Kelly

Journal:

Year:

2017

Language:

english

File:

PDF, 657 KB

english, 2017

24

Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey

Campbell, Jonathan D., Whittington, Melanie D., Kim, Chong H., VanderVeen, Gina R., Knupp, Kelly G., Gammaitoni, Arnold

Journal:

Epilepsy & Behavior

Year:

2018

Language:

english

File:

PDF, 687 KB

english, 2018

25

Treatment Strategies for Dravet Syndrome

Knupp, Kelly G., Wirrell, Elaine C.

Journal:

Year:

2018

Language:

english

File:

PDF, 662 KB

english, 2018

26

Correction to: Treatment Strategies for Dravet Syndrome

Knupp, Kelly G., Wirrell, Elaine C.

Journal:

Year:

2018

File:

PDF, 502 KB

2018

27

Neuroimaging of Early Life Epilepsy

Coryell, Jason, Gaillard, William D., Shellhaas, Renée A., Grinspan, Zachary M., Wirrell, Elaine C., Knupp, Kelly G., Wusthoff, Courtney J., Keator, Cynthia, Sullivan, Joseph E., Loddenkemper, Tobias,

Journal:

Year:

2018

Language:

english

File:

PDF, 1.12 MB

english, 2018

28

Lorcaserin therapy for severe epilepsy of childhood onset

Tolete, Patricia, Knupp, Kelly, Karlovich, Michael, DeCarlo, Elaine, Bluvstein, Judith, Conway, Erin, Friedman, Daniel, Dugan, Patricia, Devinsky, Orrin

Journal:

Year:

2018

Language:

english

File:

PDF, 133 KB

english, 2018

29

Swaiman's Pediatric Neurology || Channelopathies

Year:

2017

Language:

english

File:

PDF, 395 KB

english, 2017

30

Stiripentol for the treatment of seizures in Dravet syndrome

Eschbach, Krista, Knupp, Kelly G

Journal:

Expert Review of Clinical Pharmacology

Year:

2019

File:

PDF, 1.12 MB

2019

31

Disposition of oral delta-9 tetrahydrocannabinol (THC) in children receiving cannabis extracts for epilepsy

Wang, George Sam, Bourne, David W A, Klawitter, Jost, Sempio, Cristina, Chapman, Kevin, Knupp, Kelly, Wempe, Michael F., Borgelt, Laura, Christians, Uwe, Heard, Kennon, Bajaj, Lalit

Journal:

Clinical Toxicology (Informa Healthcare)

Year:

2019

Language:

english

File:

PDF, 798 KB

english, 2019

32

Disposition of oral delta-9 tetrahydrocannabinol (THC) in children receiving cannabis extracts for epilepsy

Wang, George Sam, Bourne, David W A, Klawitter, Jost, Sempio, Cristina, Chapman, Kevin, Knupp, Kelly, Wempe, Michael F., Borgelt, Laura, Christians, Uwe, Heard, Kennon, Bajaj, Lalit

Journal:

Clinical Toxicology (Informa Healthcare)

Year:

2019

File:

PDF, 798 KB

2019

33

Immediate outcomes in early life epilepsy: A contemporary account

Berg, Anne T., Wusthoff, Courtney, Shellhaas, Renée A., Loddenkemper, Tobias, Grinspan, Zachary M., Saneto, Russell P., Knupp, Kelly G., Patel, Anup, Sullivan, Joseph E., Kossoff, Eric H., Chu, Cather

Journal:

Epilepsy & Behavior

Year:

2019

Language:

english

File:

PDF, 387 KB

english, 2019

34

Novel study design to assess the efficacy and tolerability of antiseizure medications for focal‐onset seizures in infants and young children: A consensus document from the regulatory task force and the pediatric commission of the International League against Epilepsy (ILAE), in collaboration with the Pediatric Epilepsy Research Consortium (PERC)

Auvin, Stéphane, French, Jacqueline, Dlugos, Denis, Knupp, Kelly G., Perucca, Emilio, Arzimanoglou, Alexis, Whalen, Ed, Shellhaas, Renée A.

Journal:

Year:

2019

Language:

english

File:

PDF, 182 KB

english, 2019

35

New-onset seizure survey of epilepsy centers in the United States

Sorin, Luda M., Knupp, Kelly G., Berg, Anne T.

Journal:

Epilepsy & Behavior

Year:

2019

Language:

english

File:

PDF, 952 KB

english, 2019

36

Fenfluramine for Treatment-Resistant Seizures in Patients With Dravet Syndrome Receiving Stiripentol-Inclusive Regimens

Nabbout, Rima, Mistry, Arun, Zuberi, Sameer, Villeneuve, Nathalie, Gil-Nagel, Antonio, Sanchez-Carpintero, Rocio, Stephani, Ulrich, Laux, Linda, Wirrell, Elaine, Knupp, Kelly, Chiron, Catherine, Farfe

Journal:

Year:

2019

Language:

english

File:

PDF, 308 KB

english, 2019

37

Incidence of Hypertension Among Children Treated With Adrenocorticotropic Hormone (ACTH) or Prednisolone for Infantile Spasms

McGarry, Laurel, Messer, Ricka, Cree-Green, Melanie, Ray, Krista, Knupp, Kelly

Journal:

Journal of Child Neurology

Year:

2019

File:

PDF, 153 KB

2019

38

Fenfluramine for Treatment-Resistant Seizures in Patients With Dravet Syndrome Receiving Stiripentol-Inclusive Regimens

Nabbout, Rima, Mistry, Arun, Zuberi, Sameer, Villeneuve, Nathalie, Gil-Nagel, Antonio, Sanchez-Carpintero, Rocio, Stephani, Ulrich, Laux, Linda, Wirrell, Elaine, Knupp, Kelly, Chiron, Catherine, Farfe

Journal:

Year:

2019

File:

PDF, 308 KB

2019

39

Disposition of Oral Cannabidiol-Rich Cannabis Extracts in Children with Epilepsy

Wang, George Sam, Bourne, David W. A., Klawitter, Jost, Sempio, Cristina, Chapman, Kevin, Knupp, Kelly, Wempe, Michael F., Borgelt, Laura, Christians, Uwe, Leonard, Jan, Heard, Kennon, Bajaj, Lalit

Journal:

Clinical Pharmacokinetics

Year:

2020

File:

PDF, 684 KB

2020

40

Infantile Spasms: Opportunities to Improve Care

Messer, Ricka, Knupp, Kelly G.

Journal:

Seminars in Neurology

Year:

2020

File:

PDF, 2.81 MB

2020

41

Care Delivery for Children With Epilepsy During the COVID-19 Pandemic: An International Survey of Clinicians

Wirrell, Elaine C., Grinspan, Zachary M., Knupp, Kelly G., Jiang, Yuwu, Hammeed, Biju, Mytinger, John R., Patel, Anup D., Nabbout, Rima, Specchio, Nicola, Cross, J. Helen, Shellhaas, RenÃ©e A.

Journal:

Journal of Child Neurology

Year:

2020

File:

PDF, 600 KB

2020

42

Nonseizure consequences of Dravet syndrome, KCNQ2-DEE, KCNB1-DEE, LennoxâGastaut syndrome, ESES: A functional framework

Berg, Anne T., Gaebler-Spira, Deborah, Wilkening, Greta, Zelko, Frank, Knupp, Kelly, Dixon-Salazar, Tracy, Villas, Nicole, Meskis, Mary Anne, Harwell, Vinez, Thompson, Tina, Sims, Scotty, Nesbitt, Ger

Journal:

Epilepsy & Behavior

Year:

2020

File:

PDF, 882 KB

2020